We wept tears of joy as we drove away from the hospital yesterday. Leo saw his first sunshine and breathed in the fresh air. The sky never looked so blue.
When Abi met him, she waved at him and was sad he wasn’t waving back, then he lifted his hand and waved back. His brothers and sisters stayed home from school and soaked him in.
We’ve never been more grateful to be in our home surrounded by our beautiful family.
We met as a family 10 days ago where we prayed to know when God wanted Leo to come home, then we made promises to God and made posters as reminders. We thank God for making this miracle happen.
Thank you Sherri for your great coaching. We thank the neonatologists, MDs, nurses for their skilled care. Thank you H. Wallace and Nancy T. and Susan for loving and supporting our family so much during this time. Thank YOU for your prayers – we know Leo is home now because of them.
I showed the family the video made by our church, then asked them what is possible #BecauseHeLives
Max hit a huge milestone today – he went skiing!! Max raced Sam down the mountain several times (and won every time).
He might have looked to people like just another skier. What they couldn’t see under his ski clothes is Max’s lion heart, his persistence in physical therapy and wearing his braces and cast faithfully for 4 months.
Skiing again has been his goal for months. It’s deeply meaningful because it represents success in gaining full range of motion!
As we soared down the slopes today, unfettered by contractures or casts, I wanted to cry out,
“Free at Last,
Free at Last,
Thank God Almighty,
We’re free at last!”
Update on Max: The doctors say he is on the road to full recovery! We are so grateful for Max’s diligence with wearing his splints and doing his physical therapy! Dr. Lewis was right when she told us that recovery from a burn is 10% surgery and 90% therapy. Max’s therapists told him that at his rate, he could be on the slopes in March! Go Max!
Many thanks to my Mom and Dad for loving on our kids while Natalie and I went to Jamaica for a week.
Thank you for all your prayers and faith. God is good!
The other day, Max was taking a bath and Abi insisted on jumping in with him and washing his feet.
Max’s doctors say that his recovery is 10% surgery, and 90% physical therapy. So he continues to stretch and heal every day. The miracle is that his grafts have no more open wounds, which means he can do way more stretching at this phase than he could before. His donor sites, which are on his back, still give him grief. But we are grateful for the gracious gifts of life and breath!
What a power week full of miracles!
*Max’s third and final surgery complete!! (So grateful to not be planning our life around hospital stays and just focusing on 2-3 1/2day trips to the hospital each week:) easy!)
*Home together by Monday night because Max did so well!
*Andy & I spent a few much needed days together to reflect, recoup, and focus on each other- love my king!!
*Our children all helped each other, got along so well, and had such a great time with their grandparents that I literally cried at the load of love I received coming home Saturday night(makes a mom so proud)!!
*Amazing elves decorated our home for Christmas so we came home to magic!
*Sweet phone calls from friends and visits from caring teachers just made it all sweeter!
*So grateful for Grandparents that retired just in time for our biggest season of need! And give of themselves fully and lovingly from doing daily Max care to countless one on ones with our precious ones!
*S good majority of us learned how to knit hats today to fit our more peaceful Christmas service needs this year!
*Soaked up the Christmasdevo# tonight and loved it! “If Jesus needed certain experiences, might we also require challenges?” Bring on the challenges! Ready for a new week!
Max was freed from his 2-arm cast today!
Max has won the award for creativity and coping skills during this season – 1. he’s played legos with Talmage with his feet,
2. tutored Ben
3. he’s stayed on his back 90% of the time and
4. asked us to be his hands for every meal, drink, bathroom visit, nose scratch, etc.
His new cast lets him use his right hand again – 3 cheers for autonomy!! Max’s range of motion is awesome – the doctors are super happy with his progress.
Thank you Nana & Papa for your unending support! What a gift
Thank you all for your prayers. Max has been peaceful through all of this. Prayers are heard!
Max’s surgery went great yesterday! In fact, he was able to come home the same day!
His new cast keeps both arms straight out. He joked that the doctors had prescribed an increased rate of hugs
We managed his post-op nausea with the natural solutions. We’re so grateful for his strength and positive attitude.
Thank you so much for your prayers and love!!
We invite your prayers this morning as Max goes into his (hopefully) final surgery.
It never gets easy, and always feel lonely, sending him into the operating room.
“There is, in the suffering of the highest order, a point that is reached—a point of aloneness—when the individual (as did the Savior on a much grander scale) must bear it alone. Even the faithful may wonder if they can take any more or if they are in some way forsaken. Those who stand on the foot of the cross often can do so little to help absorb the pain and the anguish. It is something we must bear ourselves in order that our triumph can be complete.” – Neal A. Maxwell
I recommend this talk by Elaine Marshall on healing (skip to the section Healing Hurts): http://goo.gl/eleA0A
We’re kind of quarantined while Max is healing, but we couldn’t be happier.
We’ve had 2 of the sweetest days not because anything amazing happened, just because we’re all so happy to be together. Even if Max is in half a body cast and getting soaked every 2 hours, and needs help to do almost everything, we’re so happy to be alive and together!